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Organizations and Advocacy Groups Provide Additional Resources and Support

Good Days (Formerly known as Chronic Disease Fund)

Good Days helps patients suffering from chronic medical conditions, who have limited financial means, get access to the medicine they need.

Chronic Granulomatous Disease Association

A nonprofit corporation dedicated to helping CGD patients and their caregivers, and advancing research toward a cure.

Immune Deficiency Foundation (IDF)

The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases, such as CGD, through advocacy, education, and research. IDF provides accurate and timely information and resources to patients and healthcare professionals.

Living with CGD

Living with CGD is the Immune Deficiency Foundation (IDF) Resource for the Chronic Granulomatous Disease Community. The IDF provides this site as a resource for those living with CGD. It features current educational information.

CGD Society

Offers support and information to patients and families affected by CGD.

Global Genes | RARE Project

Global Genes | RARE Project is a leading patient advocacy organization working to connect and empower rare disease patients and caregivers to become successful advocates by providing tools and resources, and creating shared lessons to educate and inform. The mission of Global Genes | RARE Project is to build and unify a global rare and genetic disease community while positively impacting patients in their lifetime.

NIH/National Institute of Allergy and Infectious Diseases (NIAID)

NIAID conducts and supports research on a wide range of allergic, immunologic, and infectious diseases. Doctors and scientists at the NIH Clinical Center in Bethesda, Maryland, are continuing to search for effective treatments for immunologic disorders such as CGD.

National Organization for Rare Disorders (NORD)

NORD, a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.